Get involved

Donate time, money, advice, support – every little thing helps give hope to people with a bleeding disorder.

Make a difference

Share stories and advice, campaign for change. We're in this together.

Become part of the family

We're united through blood, and we're there for each other no matter what.

Living with a bleeding disorder is never black and white. And it’s not all blood-red either. Life after diagnosis may start out hard, but we learn by doing, making mistakes, asking questions and surrounding ourselves with people who understand.

Then, slowly, it just becomes life again. Because a bleeding disorder shouldn’t define who we are, what we do or how we feel.

Through our community, we find the freedom, opportunity and fun in life after diagnosis.

Find out what we do

What do you need help with today?

My child is newly diagnosed

Finding out that you or your child has a bleeding disorder can be a stressful experience, and we’re here to help you to make sense of it all.

Newly Diagnosed

Someone I know has a bleeding disorder

There are lots of different bleeding disorders. Find out more about the different types of bleeding disorders and the treatment options available.

Diagnosis & Treatment

I need help & support

All you need to know to keep fit and healthy with a bleeding disorder and the support and benefits available to you and your family.

Day-to-day Living

Latest news at the Haemophilia Society

09 Jan 26

Hemlibra administration kit needle information 

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24 Nov 25

2025 THS Superstar Awards announced

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06 Nov 25

Vote for ‘Making Waves: The Gozo-Malta Swim’ in the 2026 Smiley Charity Film Awards

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06 Oct 25

Hezekiah – the haemophilia hound dog

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Read more news articles

Upcoming & recent events at the Haemophilia Society

Members Only
  • 20 Mar 26 - 22 Mar 26

Newly Diagnosed Families Weekend 2026 – FULLY BOOKED

We know that getting a diagnosis for your child can be overwhelming, and we’re here…
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  • 12 Apr 26

London Landmarks Half Marathon 2026

Registration Deadline: 13 November 2025 Event Details: Run through the heart of London and discover…
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  • 12 Apr 26

Brighton Marathon 2026

Registration Deadline: 13 November 2025 Event Details: Are you ready to lace up your running…
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  • 19 Apr 26

adidas Manchester Marathon 2026

Registration Deadline: 3 November 2025 Event Details: Are you ready to lace up your running…
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  • 26 Apr 26

TCS London Marathon – April 2026 – Applications closed

Join team #THS at the TCS London Marathon 2026! Public Ballot If you’ve secured your ballot…
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Members Only
Save the Date
  • 09 May 26 - 10 May 26 at 9:30am to 1:30pm

Rare Together: A conference for everyone living with a rare bleeding disorder

Our weekend offers support, information and friendship for people living with rare genetic bleeding disorders,…
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  • 17 May 26

Colchester Zoo Stampede 10k

Registration Deadline: 15 April 2026 Event Details The Colchester Stampede 10k is an event like…
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  • 17 May 26

Hackney Half Marathon 2026

Registration Deadline: 16 February 2026 Event Details: Are you ready to lace up your running…
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  • 24 May 26

Edinburgh Half Marathon

Registration Deadline: 12 January 2026 Event Details Get ready to put on your running shoes…
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Save the Date
  • 24 Oct 26 at 2:30pm

Service of Remembrance and Thanksgiving

For all those people with inherited bleeding disorders who have died due to their treatment…
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See all events

Members Stories

Elliott’s Story

‘I had gene therapy five years ago – and haven’t had a bleed since’  Thanks…
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Joey’s triple fund-raising inspirations

Three very special people with bleeding disorders inspired Joey Beavis’ insane fundraising challenge of walking…
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Letter to the Prime Minister June 2023

Dear Prime Minister,  We are writing to you as the charities that work with, support…
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Henry’s Story

Carreen, from Surrey, got in touch with THS to let us know that activities from…
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Read all members stories

Become a Member

Become a member of The Haemophilia Society free today. Fill in a simple form and we will send out a membership pack to you.

Join us now

Campaign with us

Push for fairness for people with bleeding disorders affected by contaminated blood. Join us in demanding just support packages.

Take action

Get Involved

Our members and supporters do amazing things to raise funds for us. Challenge yourself or team up with friends to raise money.

Sign me up

Reach Out

We can be found on all the usual online channels – Facebook, Twitter, Instagram and e-mail. But if you’re more of a people person, we’re still on the end of a phone.

Get connected

Understanding Haemophilia & other bleeding disorders

People with bleeding disorders, have a condition that means the blood can’t clot properly. Those with bleeding disorders experience bleeding for longer and may sometimes experience spontaneous bleeds into joints, muscles and soft tissues. Some of the most common bleeding disorders include: Haemophilia A & B | Von Willebrand Disease

Browse bleeding disorder information