Living with a bleeding disorder is never black and white. And it’s not all blood-red either. Life after diagnosis may start out hard, but we learn by doing, making mistakes, asking questions and surrounding ourselves with people who understand.
Then, slowly, it just becomes life again. Because a bleeding disorder shouldn’t define who we are, what we do or how we feel.
Through our community, we find the freedom, opportunity and fun in life after diagnosis.
What do you need help with today?
My child is newly diagnosed
Finding out that you or your child has a bleeding disorder can be a stressful experience, and we’re here to help you to make sense of it all.
Newly Diagnosed
Someone I know has a bleeding disorder
There are lots of different bleeding disorders. Find out more about the different types of bleeding disorders and the treatment options available.
Diagnosis & Treatment
I need help & support
All you need to know to keep fit and healthy with a bleeding disorder and the support and benefits available to you and your family.
Day-to-day Living
Latest news at the Haemophilia Society
18 Nov 24
Recognition awards for outstanding care announced
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30 Oct 24
The Haemophilia and Bleeding Disorders Alliance
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22 Oct 24
Mountain climb raises £3,000
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Upcoming & recent events at the Haemophilia Society
Christmas Carol Service, 2024
Celebrate the festive season with us at our highly anticipated Christmas Carol Service! It’s that…
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04 Dec 24 - 05 Dec 24 at 7:00pm
Santa in the City – London
Registration Deadline: 26 November 2024 You can run, jog, or walk. This route is suitable…
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London Winter Walk
A great event to walk off the Christmas celebrations, and to kick start your New…
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27 Feb 25 at 12:30pm to 4:30pm
Medicine and Me: Living our best life
Examining innovations to deliver optimal care for people with genetic bleeding disorders We’re thrilled to…
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Members Only
Save the Date
Newly Diagnosed Families Weekend 2025
Our Newly Diagnosed Families Weekend is a special event exclusively designed for families who have…
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London Landmarks Half Marathon 2025
Registration fee £35 (excluding booking fee) Minimum sponsorship £500 Our partner Run For Charity, with…
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London Marathon 2025
Marathon Day next year is Sunday 27 April 2025. The London Marathon is one of…
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CANCELLED – 2025 Ford Ride London-Essex 100
RideLondon, which has featured a Women’s UCI WorldTour race, mass participation rides over 100 miles,…
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Members Only
Save the Date
Youth Camp 2025
Monday 28 July – Friday 1 August 2025. Calling all children with a bleeding disorder…
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Members Only
Save the Date
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28 Aug 25 - 31 Aug 25 at 4:00pm to 1:00pm
Inbetweeners 2025
Thursday 28 August – Sunday 31 August 2025 Are you a young person aged 16-18…
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Swim Serpentine 2025
Calling all open-water enthusiasts! Swim Serpentine is a fantastic opportunity to take on a challenge…
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