News

Hemlibra administration kit needle information 

The manufacturer of Hemlibra, also known as emicizumab, has informed us that a small number of the product’s…
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2025 THS Superstar Awards announced

At our Big Get-Together in Northampton on Saturday 22 November, we announced the winners of…
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Vote for ‘Making Waves: The Gozo-Malta Swim’ in the 2026 Smiley Charity Film Awards

Vote now! Our film ‘Making Waves: The Gozo-Malta Swim’ has been put forward for the…
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Hezekiah – the haemophilia hound dog

What has the Haemophilia Society got to do with a giant cuddly dog which was…
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THS Superstar Awards 2025

Following on from the success of last year’s ‘Recognition Awards’ in which a doctor, nurse…
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Haemophilia A treatment extended to moderates

More people will be eligible to use emicizumab, the only treatment currently available for haemophilia…
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Lydia, Sam and Jude’s Newly Diagnosed Weekend experience 

Lydia and her partner were in complete shock when their three-month-old son Jude was diagnosed…
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First NHS patient receives gene therapy for haemophilia B

A 44-year-old man has become the first person to receive gene therapy for haemophilia B…
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Have your say on bleeding disorder care

Have your say on new guidelines which set the standards of care for all haemophilia…
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New treatment for severe haemophilia B approved

Marstacimab, a new treatment for severe haemophilia B which can be injected under the skin,…
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How an eight-year-old boy inspired the foundation of the Haemophilia Society

When Joseph O’Rourke co-founded the Haemophilia Society in 1950, very few people in the medical…
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#Team THS London Marathon ’25 – Luke’s story

Luke will run the London Marathon on 27 April in memory of his much-missed dad,…
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