News

Office closure on Monday, 19 September

On the date of the State Funeral, our office will be closed to mark our…
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The passing of Her Majesty The Queen Elizabeth

As a UK-based charity that formed at the beginning of her reign, we are deeply…
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Infected Blood Inquiry interim report recommends interim compensation

The Infected Blood Inquiry has this afternoon published an Interim Report from the chair Sir Brian…
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Putting Access to Physiotherapy on the Agenda in Parliament

The Haemophilia Society this week brought together key people from the world of haemophilia care…
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First Gene Therapy Treatment for Haemophilia to be Licensed

Last week the European Medicines Agency recommended that a license be granted to Roctavian a gene therapy…
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European Conference Discusses Better Support For Women

The weekend of 21 and 22 May 2022 saw the second ever European conference dedicated to…
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Cell and Gene Collective calls for more political leadership to ensure patient access to gene therapies

The Haemophilia Society is part of a group of rare disease charities called the Cell…
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Thank you for your support of Ukraine!

We’ve been overwhelmed by your generous support of our Ukraine emergency appeal to help people…
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Government needs to publish study on Compensation Framework for people affected by contaminated blood products

The Haemophilia Society, MPs and other campaigners have written to the Government demanding they publish…
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Advances in inhibitor knowledge and treatment

Inhibitors are a complication of haemophilia treatment, in which the patient’s body begins to produce…
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Success at Talking Red Live

Talking Red Live in York in early March brought together women with bleeding disorders from…
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New Treatment Options for Glanzmann’s on the Horizon

Last month clinicians and researchers from across the world gathered virtually at EAHAD, a congress…
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