Our Community

We provide support for all life stages. We want to help our members lead fulfilling lives, make informed choices and to support and inspire others.  Most importantly, we have a community that knows exactly what you are going through. 

We raise awareness of bleeding disorders in our community and beyond.  As a member you can take part in a wide range of members events and meet other people with bleeding disorders. We run various events throughout the year, such as Newly Diagnosed Weekend, Youth Camp, Inhibitor Information and Support, Talking Red, and Living Well, all of which are free to members. That’s why we have arranged the events listed below, take a look and join us.

Newly Diagnosed Family Weekend

This amazing weekend is aimed at families who have a child (0-5 years old) newly diagnosed with a bleeding disorder. This residential weekend provides the opportunity to attend informative sessions with health professionals, including specialist nurses, paediatricians and physiotherapists.

You can also swap stories and make new friends in our community. Some of our fantastic youth ambassadors will also be there to share their stories. A specialist crèche offers fun to play and learning for your little ones while you join our sessions.

Youth Camp

Our young members can struggle to cope with having a bleeding disorder and having to get treated every few days. This sometimes restricts activities they can do and, therefore, miss out on having fun. Our five-day summer camp, held in July or August, allows children to understand more about their bleeding disorders and raise their confidence levels. It also gives them the chance to understand how teamwork and determination can benefit them. 

Ageing support

We aim to reduce isolation and provide our community with information and support as they age.

The majority of our members aged 30+ are living with co-morbidities such as HIV, hepatitis B and hepatitis C and may also have been told they are at risk from vCJD.

We want to ensure all our services meet the needs of our members and are designed with this community in mind.

Women’s awareness

Women can have bleeding disorders.  Tens of thousands of women across the UK are living with symptoms of a bleeding disorder without even knowing it. There are lots of misunderstandings about bleeding disorders and often people do not know women are also affected. 

Women with bleeding disorders also need regular treatment and specialist care. Therefore, THS regularly run campaigns to raise awareness. One event, Talking Red, helps women more aware of the symptoms of a bleeding disorder – heavy periods, bruising easily and prolonged bleeding after a procedure or childbirth. Our women’s awareness events aim to promote a better understanding of what it means to live with such a condition.

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