The Big Get-Together 2024

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Registration now open!

Join us for our Big Get-Together – our conference for everyone with a bleeding disorder

We’re bringing together people with bleeding disorders of all ages from across the UK at our Big Get-Together on Saturday 16 November 2024 in the Leicester Marriott Hotel. It will also include the Haemophilia Society’s Annual General Meeting (AGM), which is open to all members.

Get ready for a day filled with informative sessions, interactive workshops, and engaging discussions led by experts in the field. Free to our members (and don’t forget it’s free to join the Haemophilia Society), come along to meet others with haemophilia, von Willebrand disorder (VWD), factor XI deficiency, Glanzmann Thrombasthenia and other rare genetic bleeding disorders. Don’t miss this opportunity to come together to make lasting connections, learn about your condition and the latest updates in bleeding disorder care.

Take a look at our draft agenda to gain an insight into how the day will unfold.

Please be advised that members are responsible for booking their own accommodation for this event. Unfortunately, we are unable to provide subsidised rates for hotel stays or a creche service.

Film Showing

We will be screening a short film about the blood scandal during lunch. ‘What We Wished We Could Be’ is a wonderful short film from Slick Films about a love story which shows the real heartbreak felt by so many across the Contaminated Blood community. The filmmakers will be there to introduce the film and answer any questions.

Please note that the Big-Get-Together is a members-only event. Membership is FREE, and you can apply here. Be sure to also register for the event so we can confirm the final numbers.

Youth Workshop

Join our Youth Workshop led by the amazing Natalie Lawson, our Medical Trustee and Haemophilia Nurse Specialist from Birmingham!

The workshop is open to our younger members aged 8-17 with a bleeding disorder or siblings of people with a bleeding disorder. Get involved in a lively, interactive day filled with games, sharing experiences and meeting new people.

Registration

RSVP using the link below. Conference sessions are complimentary, including lunch and refreshments. We kindly request you indicate your preferred workshops to help us estimate the number of participants per session. However, please note that workshop choices are not set in stone and allow for flexibility, enabling members to switch between or alter their preferences if desired.

  • Member ticket – for members of the Haemophilia Society. If you are not a member, submit a membership form here.
  • Industry ticket – for people who work in relevant industries e.g., healthcare professionals or corporate professionals.

Sponsors

  • LFB BIOPHARMACEUTICALS LIMITED is a Contributing Partner of our Big Get-Together 2024.
  • Support has been provided by Sobi in support of our Big Get-Together 2024.